Eric Samarut Lab in partnership with the Animal Transgenesis and Modeling Platform at CRCHUM of the University of Montreal was officially awarded the Rare Disease Models and Mechanisms Catalyst Grant for seed funding to tackle a new genetic etiology of Infantile Spasms and Lennox-Gastaut Syndrome.  

The Lightning and Love Foundation is excited to form a research partnership with the incredibly talented team at Rarebase to innovate and drive efficient translational research in our mission to develop treatment for THAP12 genetic disease.  

The Lightning and Love Foundation is proud to represent the patient perspective through our partnership with the Cure Rare Disease Initiative in association with The Cure Drug Repurposing Collaboratory between Critical Path Institute, FDA, and the NIH.